Retrieved 20 May 2020. http://www.healthmeasures.net/explore-measurement-systems/promis. Furthermore, concussion has been found to impact emotional and behavioral dyscontrol domains of HRQOL in pediatric . Table 2 shows the proportion of SRH responses for a 47-year-old non-Hispanic white female (the average respondent in the sample) using the logistic regression results. Any subset of items from the calibrated set can be used to get a score that is comparable to any other subset of items; the score from a clinical trial that measures depression using 8 items can be compared to the score from a population survey that measured depression using 2 items. Summary scores of HRQoL can be constructed using psychometric techniques or econometric techniques [32]. Negative mood (sadness, guilt), views of self (self- criticism,worthlessness), and social cognition (loneliness, interpersonal alienation), as well as decreased positive affect and engagement (loss of interest, meaning, and purpose). Percent of responses at baseline and 3 months with the lowest and highest possible scores. 2023 BioMed Central Ltd unless otherwise stated. One benefit of IRT-based measures is the ability to co-calibrate with other measures. Stroke: (Katzan 2017, n=1102, age = 60.8 (14.9) years old, 46.2% female), Correlation with PROMIS Global Health items, Breast Cancer: (Krohe et al., 2019; n=14; age = 66 (12.4); Advanced Breast Cancer), Rheumatoid Arthritis: (Bingham 2019, n=546, age = 57 (14) years old, 81% female, recruited from online patient communities, Computer Adaptive Testing (CAT)), Rheumatoid Arthritis: (Bingham 2019, n=546, age = 57 (14) years old, 81% female, recruited from online patient communities), Correlation of PROMIS fatigue short forms with PROMIS Physical Function, Chronic Musculoskeletal Pain: (Deyo 2016, n=198, age = 66.5 (8.2) years old, 62.1% female, recruited from primary care physicians offices, Computer Adaptive Testing (CAT)), Scores on patient-reported outcomes at baseline and follow-up, Domains as T-scores (population mean 50, sd 10), Chronic Musculoskeletal Pain: (Deyo 2016, n=198, age = 66.5 (8.2) years old, 62.1% female, recruited from primary care physicians offices), Test-retest reproducibility of PROMIS measures and the derived impact score, Evidence of construct validity of baseline PROMIS measures and the derived impact score, *T-test of means. PROMIS - HealthMeasures | PatientIQ Couper MP, Peterson GJ. https://doi.org/10.1007/s11136-018-1842-3. In September 2014, the NIH extended its support to PROMIS through funding the National Person Centered Assessment Resource (PCAR/HealthMeasures). Neumann PJ, Sanders GD, Russell LB, Siegel JE,Ganiats TG. A library of these co-calibrations can be found at at PROsetta stone [43]. Negative SDoH exposures were common. Because health utility scores represent the preferences of a population make these scores good candidates for monitoring population health because they measure both the amount and the value of HRQoL in a single number. Drinking patterns, cue-based drinking, cravings to drink, and efforts to control drinking that indicate problematic drinking, particularly at the high end of the severity continuum. In contrast, health utility measures have a single summary score that estimates the value of HRQoL. 5-10 minutes for short form. Retrieved August 7, 2021. http://www.prosettastone.org/LinkingTables1/Linking%20Tables%20vol2/PROMIS%20Depression%20and%20K6%20Full%20Report.pdf. Ethics approval was given by [blinded] IRB PRO17080294. Importantly, the CAT is a 14-question instrument for . All analyses were weighted to be nationally representative. CAT questionnaires allow an accurate measurement of health status using the fewest possible questions. -CSignificant ceiling effect was observedseen for PROMIS PFSF8a at time 2. Yan T, Tourangeau R. Fast times and easy questions: the effects of age, experience and question complexity on web survey response times. The author gives permission for Health and Quality of Life Outcomes to publish this report. A cross sectional survey of 4142 US adults included demographics, 7 PROMIS domains with 2 items each, the PROMIS-preference (PROPr) score, self-rated health (SRH), 30 social determinants of health (SDoH), and 12 chronic medical conditions. Concussion is an injury that can result in several different symptoms, impairments, and functional limitations that have been found to lower HRQOL. PROMIS Global-10 is a newly validated 10-question survey used to assess health care-related quality of life measures for the general population. This manuscript illustrates the difficulties in using SRH as an outcome measure when compared to continuous outcome measures such as PROMIS and PROPr. . 2012;43(3):52739. Streiner DL, Norman GR, Cairney J. Journal of Shoulder and Elbow Surgery. Item banks are not intended to be administered in their entirety. https://doi.org/10.1002/acp.1331. Environmental factors related to dyspnea, including exposure to airborne allergens, pollutants and smoke, and whether or not an adult is exposed to airborne factors in their environment that could impact their shortness of breath. Friend and family disapproval (e.g., if I quit smoking my friends will respect me more), self-disapproval (e.g., I get upset when I think about my smoking), and internalization of social norms (e.g., I feel uncomfortable smoking around kids). The Journal of Rheumatology, 45(3), 397404. doi:10.3899/jrheum.170590, Katzan, I.L., Lapin, B. The Society of Gynecologic Oncology's Policy, Quality, and Outcomes Taskforce identified "significant, but surmountable" challenges in integrating patient-reported outcomes measures in healthcare. Changes in PROPr score can be evaluated using PROPrs MID (0.04), standard deviation (0.215), or range (0.022 to 1.0). Implementing PROMIS - PROMIS Health Organization PubMed Behaviors that typically indicate to others that an individual is experiencing pain. There are a wide variety of indicators used to measure and monitor population health including mortality, disease prevalence, disability, and injury rates. Greater than >90% of participants demonstrated understanding of each item, Greater than >90% of participants understood response to options 1-6, Greater than or equal to >50% of participants understood response to options 7-10. Oak et al 2016, n=50; mean age=41 (13.9): 45 patients followed up post-op, observed over a mean of 3.6 months. PROMIS-29 v2.0 profile physical and mental health summary scores Can Patient-Reported Outcomes Measurement Information System (PROMIS Part of These estimated distributions are dependent on the other covariates (age, gender, race, ethnicity) entered in the logistic regression results. PROMIS on the App Store Privacy Single-item SRH has had a long history as a measure of HRQoL. What is the significance of the issue? These actions or reactions can be verbal or nonverbal, and involuntary or deliberate. Annu Rev Public Health. Shanthini et al (2018): values are Spearman correlations. doi:10.1007/s11136-009-9496-9, Kasturi, S., Szymonifka, J., Burket, J. C., Berman, J. R., Kirou, K. A., Levine, A. Cross-sectional validation of the PROMIS-preference scoring system. Toll-Free U.S. Therefore, any measures used to quality and monitor population health should be responsive to both CC and SDoH. https://doi.org/10.1093/acprof:oso/9780190492939.003. A., Ahn, J., & Singh, K. (2019). Positive personal outcomes of alcohol use over the past 30 days. Sexual Function and Satisfaction: Orgasm - Pleasure (for Sexually Active People). PROMIS: Clinical Outcomes Assessment - National Institutes of Health Choi SW, Podrabsky T, McKinney N, Schalet BD, Cook KF, Cella D. Prosetta Stone methodology: a Rosetta stone for patient reported outcomes. Hanmer J, Cella D, Feeny D, et al. Activities that require use of the upper extremity including shoulder, arm, and hand activities. In: Stewart AL, Ware JE, editors. With only 2 excpetions, within any CC or SDoH, no other PROMIS domain reach the MID threshold without these 3 domains also reaching the MID threshold. Assuming that this result is not spurious, it may be that people who are self-employed have a better global view of their overall HRQoL, as measured by SRH, but are not different from the general population when asked more specific questions about their symptoms and function, as measured by PROPr. Feasibility, Validity, and Reliability of the 10-item Patient Reported Outcomes Measurement Information System Global Health Short Form in Outpatients with Systemic Lupus Erythematosus. Difficulty swallowing solid and soft foods, liquids, and pills as well as throat/chest pain and the sensation of food being stuck in the throat/chest. HealthMeasures remains an online resource that provides access to the following comprehensive measurement systems: The HealthMeasures resource provides state-of-the-science assessment of physical, mental, and social health, as well as performance measures of cognition, motor and sensory function, for use across a range of chronic diseases as well as the general population. No limitation is placed on what the person includes in his or her definition of sex life., Sexual Function and Satisfaction: Screeners. Direct negative psychosocial effect of cancer, distinct from general emotional distress. The PROMIS Global Health measures assess an individual's physical, mental, and social health. Availability and use of assistive devices (e.g., cane, grab bar, or oxygen) and whether or not an individual uses such devices. Perceived availability of helpful information or advice. Presenting quantitative information about decision outcomes: a risk communication primer for patient decision aid developers. Cite this article. Measuring the publics health. Google Scholar. Create and promulgate a set of qualitative and quantitative methodological standards for development and validation of PROMIS instruments. Advances in measuring pediatric overall health: the PROMIS - Springer Language links are at the top of the page across from the title. Recently, there have been significant advancements in generic HRQoL measures, including the development of the Patient-Reported Outcomes Measurement Information System (PROMIS), which is an initiative supported by the National Institutes of Health to create generic HRQoL measures using Item Response Theory (IRT) [19]. A separate analysis was done for each CC and SDoH. Performance of a Patient Reported Outcomes Measurement Information System (PROMIS) Short Form in Older Adults with Chronic Musculoskeletal Pain. [4] PROMIS is one initiative within this program. PROMIS measures have greater precision than most conventional measures. Stroke, 49 (1): 147-154. doi:10.1161/STROKEAHA.117.018766, Khechen, B., Patel, D. V., Haws, B. E., Cardinal, K. L., Guntin, J. A conceptual framework for action on the social determinants of health: debates, policy and practice, case studies. More that 2,000 publications on utilization of PROMIS have been published between 2006 and 2020. Annu Rev Public Health. Using smoking as a way to cope with various types of negative affect, affective consequences of not smoking, and the extent to which negative affect triggers smoking. Stewart AL, Hays RD, Ware JE. Implementation guides for specific patient populations are also available. Supplemental: Traumatic Brain Injury (TBI), Amyotrophic Lateral Sclerosis (ALS), Chiari I Malformation (CM), Epilepsy, Friedreich's Ataxia (FA), Headache, Huntington's Disease (HD), Mitochondrial Disease (Mito), Multiple Sclerosis (MS), Myasthenia Gravis (MG), Neuromuscular Diseases (NMD), Duchenne/Becker Muscular Dystrophy (DMD/BMD), Spinal Muscular Atrophy (SMA), Parkinson's Disease (PD), Stroke, and Spinal Cord Injury (SCI), and Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage (SAH), Exploratory: Cerebral Palsy (CP) Myotonic Muscular Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD) and Sport-Related Concussion (SRC), *Headache specific subtest recommendations : Anxiety (Adult/Pediatric), Depression (Adult/Pediatric), Sleep (Adult). Sexual Function and Satisfaction: Vaginal Discomfort with Sexual Activity (for Sexually Active Women). In general, a minimally important difference (MID) for a PROMIS domain is between 3 and 5 points [28]; for this report, a difference of 4 points is considered to be a MID. Managing communication with others about their medical condition, including communication with health professionals. Soc Sci Comp Rev. B., Sammaritano, L.R., Mandl, L.A. (2018). Stroke, 49 (1): 147-154. doi:10.1161/STROKEAHA.117.018766. PROMIS Fatigue short forms are reliable and valid in adults with rheumatoid arthritis. To create and evaluate figures (T-score Maps) to facilitate the interpretation of scores on Patient-Reported Outcome Measurement Information System (PROMIS) measures. Scoring: Item-levels are scored numerically for an individual's response to each question. Recommendations from Successful Implementations, Guidance for Integration in Grant Proposals. The articles span various research and clinical applications using PROMIS, illustrating its value and pointing to future opportunities and challenges. Self-Efficacy for Managing Chronic Conditions Manage Social Interactions. PROMIS measures are standardized, allowing for assessment of many patient-reported outcome domainsincluding pain, fatigue, emotional distress, physical functioning and social role participationbased on common metrics that allow for comparisons across domains, across chronic diseases, and with the general population. In comparison, the coefficient for food insecurity when the outcome is PROPr is 0.208. Why do web surveys take longer on smartphones? Published online March 2000. Development and validation of an interpretive guide for PROMIS scores In order to sustain the HealthMeasures resource, Northwestern University has developed a cost-recovery structure for certain applications and consulting services. PROMIS (Patient-Reported Outcomes Measurement Information System) is a set of person-centered measures that evaluates and monitors physical, mental, and social health in adults and children. The goal was to make HealthMeasures a sustainable resource, independent from NIH funding. PROMIS tools measure what patients are able to do and how they feel by asking a number of questions. Response options were Always, Usually, Sometimes, Rarely, and Never. Participants who responded Always or Usually to any of these questions were categorized as food insecure. Between 2004 and 2009, PROMIS consisted of a Statistical Coordinating Center, located at Evanston Northwestern Healthcare, and six research sites located at Duke University, University of North Carolina at Chapel Hill, University of Pittsburgh, Stanford University, Stony Brook University, and University of Washington. US Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Health Statistics; 2014. Computer adaptive tests (CAT) There are separate assessments for adult populations. gurgling or rumbling). Self-Efficacy for Managing Chronic Conditions Manage Emotions. The extent to which cognitive impairments interfere with daily functioning, whether other people observe cognitive impairments, and the impact of cognitive dysfunction on quality of life are also assessed. General issues related to quality of life. Of the 30 SDoH, 19 statistically significant differences were found by SRH and 26 statistically significant differences by PROPr. (2003) Design strategies and innovations in the medical expenditure panel survey. Overall evaluation of one's mental health. Health and Quality of Life Outcomes These items cover physical, mental, and social consequences of drinking. http://creativecommons.org/licenses/by/4.0/, http://creativecommons.org/publicdomain/zero/1.0/. SDoH and chronic condition impact estimates were created by regressing the outcome (PROMIS domain, PROPr, or SRH) on demographics and SDoH or a single chronic condition. Although the measures in the HealthMeasures resource were developed and initially validated in English and Spanish within the US, they are increasingly being used around the world. Participants completed several HRQoL questionnaires, self-reported 12 CC, and answered questions about 42 SDoH. System Pediatric Global Health Measure 7 (PROMIS PGH7), Connor Davidson Resilience Scale 2 (CD-RISC 2), and CAT (Figure). Originally created by the National Institute of Health (NIH), PROMIS is an expansive system of person-centered measures that evaluates and monitors functions, symptoms, behaviors, and feelings in a number of different domains. Hanmer J, Feeny D, Fischhoff B, et al. Of the 37 statistically significant coefficients (both CC and SDoH) for PROPr, 36 reach MID; there is not an MID to apply to the 30 statistically significant odds ratios for SRH. Sexual Function and Satisfaction: Interest in Sexual Activity. Translations available in Spanish and many other languages. PROMIS - What is PROMIS? - Johns Hopkins Arthritis Center The Patient-Reported Outcomes Measurement Information System (PROMIS) gives patients a voice and leads providers to actionable treatments across a broad range of diagnoses. Shirley Ryan AbilityLab does not provide emergency medical services. Committee on Educating Health Professionals to Address the Social Determinants of Health; Board on Global Health; Institute of Medicine; National Academies of Sciences, Engineering, and Medicine. This measure was created to incorporate the PROMIS Preference Scoring System. To access HealthMeasures, visit www.healthmeasures.net. PROMIS measures can be used in the general population and with adults and pediatric populations with a chronic condition(s). An adults relative dispositional tendency or preference toward being active or sedentary. Originally created by the National Institute of Health (NIH), PROMIS is an expansive system of person-centered measures that evaluates and monitors functions, symptoms, behaviors, and feelings in a number of different domains. http://iom.nationalacademies.org/Reports/2012/Living-Well-with-Chronic-Illness/Report-Brief.aspx. . Durham: Duke University Press; 1992. p. 14372. There are currently 122 different assessment domains organized into physical, mental, social and global health groups. It can be used with the general population and with individuals living with chronic conditions. Orthopaedic journal of sports medicine, 4(12), 2325967116674714. doi:10.1177/2325967116674714, Saad, M.A., Kassam, H.F., Suriani, R.J., Pan, S.D., Blaine, T.A., Kovacevic, D. (2018). 2003;41(7 Suppl):III512. Development and validation of an interpretive guide for PROMIS scores Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made.
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